Cystic Fibrosis (CF)

Cystic Fibrosis (CF) is a hereditary disease. We have listed the most important information about this disease.

What is Cystic Fibrosis? (CF)

Cystic Fibrosis (CF) is a hereditary disease. If you have CF, the mucus produced by your body is too thick, making proper functioning difficult and sometimes even impossible. The disease manifests itself in the lungs, pancreas and reproductive organs. These organs will function less and less over time. For the time being, CF is an incurable disease.

Cause of Cystic Fibrosis

CF is caused, by a mistake in the CF gene. This mistake or mutation is "inherited" from both your parents. So it's not contagious or anything. If you only have one such part with an error, then there is nothing wrong. You are only the "carrier" of CF. If you have two, one from each parent, who each are 'carriers', you have CF.

About 1 in 30 Dutch people is a carrier of this genetic error. About 1500 people in the Netherlands currently have CF, and each year 25 children are born with the disease.

WHAT SYMPTOMS MAY YOU HAVE IF YOU HAVE CF?

There are different manifestations of CF, so that (the severity of) the complaints can differ per person. Complaints can be noticeable throughout the entire body.

THE GENERAL SYMPTOMS OF CF ARE:

  • Respiratory complaints: a lot of coughing, coughing up mucus and respiratory infections
  • Growth and/or development delay due to, among other things, less effective food digestion and poor absorption of fat-soluble vitamins
  • Stomach ache
  • Impaired fertility (particularly in men with CF)
Evibra levert vitaminepreparaten speciaal voor kinderen en volwassenen met CF, in de vorm van druppels, softgels (smaakneutraal) of kauwtabletten (in diverse smaken).

CF MULTIVITAMINS FROM MVW HELPS CF PATIENTS:

  • Strengthen the immune system
  • Support for bone building
  • Eyeside

View here our products

VITAMINS BY CYSTIC FIBROSIS

Which vitamin do you need ‘extra’ when you have Cystic Fibrosis?

Our body needs vitamins to function well. With a good diet, the body gets enough vitamins. However, there is a group of vitamins that need fat to dissolve properly. These are the so-called fat-soluble vitamins.

If you have CF, you absorb fats less well through the intestines, which means that these vitamins do not reach your bloodstream and thus not the rest of your body. Therefore, people with CF must take special vitamin preparations to maintain a healthy vitamin balance.

THE FAT-SOLUBLE VITAMINS ARE THE VITAMINS A, D, E AND K:

  • Vitamin A is necessary for good vision, growth and the immune system
  • Vitamin D is necessary for a good bone structure. Severe deficiencies cause rickets (this is an English disease)
  • Vitamin E is necessary to maintain the defence mechanisms in the body.
  • Vitamin K is necessary for proper blood clotting. Your diet contains enough vitamin K. However, if the clotting is disturbed, you should take extra vitamin K. The most commonly used forms are Konakion® and Phytomenadion®.

Evibra supplies vitamin preparations specially for children and adults with CF, in the form of drops, soft gels (taste-neutral) or chewable tablets (in various flavours). These contain the fat-soluble vitamins A, D, E and K, and the water-soluble vitamins B & C, folic acid and zinc.

MVW vitamins are developed to meet or exceed the recommended supplementation of vitamins by the Cystic Fibrosis Foundation Nutrition Consensus Statement (2002). The products contain increased concentrations of vitamins D and K to support bone health.

MEDICAL PRESCRIPTION VITAMINS

Medical prescription: MVW vitamins are only available on medical prescription through the doctor or dietician in one of the expertise centres.

LEARN MORE ABOUT CYSTIC FIBROSIS

Consult the website of the Dutch Cystic Fibrosis Foundation (NCSF):
www.ncfs.nl

Visiting address and postal address:
Dr. A. Schweitzerweg 3a
3744 MG Baarn
Phone: 035-6479257
Email : info@ncfs.nl

Specialized CF Centers

Seven so-called ‘CF centres’ have been established in the Netherlands for diagnosis and treatment. These are located in Utrecht, The Hague, Amsterdam, Groningen, Maastricht, Nijmegen and Rotterdam.